PPI opportunities

This page has the latest PPI training and opportunities for involvement for researchers, patients and the public living in and around Cambridge.

Please note that these are external events and the CUH PPI Team is not involved with their organisation or management, unless otherwise stated.

If you have any questions, please reach out via the avenues provided for each opportunity.

All information on this page is renewed weekly – last updated on 18 July 2024.

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Involvement opportunities

Healthwatch Norfolk: young voices needed

Aged 16 to 25? Is the Queen Elizabeth Hospital your local hospital? Want to make sure the voice of young people shapes services? 

Join the QEH Youth Council: http://teamqehyouth.co.uk

Assessing human embryo donations for research

Our research group studies human embryo development to identify the causes of early pregnancy loss. Critical for our research is the donation of supernumerary human embryos from IVF treatments. We would like to know your opinion about our current patient information document, which explains the aims of the research and the conditions of the donation.

To view this document, please contact: Marta Shahbazi, mshahbazi@mrc-lmb.cam.ac.uk

Bowel Research UK: survey

Complete survey by 15^th August

Help guide research into bowel accidents or faecal incontinence by completing the follow-up survey with The Pelvic Floor Society and the James Lind Alliance.

Survey: https://bit.ly/FIPriorities

Crohn’s & Colitis Research: patient perspective needed

Do you have lived experience of perianal Crohn’s Disease? 

Researchers at St Mark’s Hospital, the National Bowel Hospital in London, are looking for a patient representative to sit on a steering group for the perianal Crohn’s Disease priority setting partnership.

Find out more on the Crohn’s & Colitis website.

Participation opportunities

STEPS: Primary-to-secondary transition for children with Special Educational Needs and Disabilities (SEND)

We’re still recruiting parents of children with SEND who are getting ready to start secondary school!

Complete a brief survey; in return get access to FREE specialist transition resources: videos, activities, top tips – co-created with young people & families. 

Link: https://yorksj.eu.qualtrics.com/jfe/form/SV_eKYNo91pi8SVrdY

Inflammatory Bowel Disease: anonymous survey

Are you living with Inflammatory Bowel Disease (IBD) and 16 years of age or older? This anonymous survey at University Health Network aims to assess how immigrants and non-immigrants perceive the care provided for their IBD.

Survey: https://external.redcap.uhn.ca/surveys/?s=KPFYFWDMMCKTC97J

COSCAR – Developing Core Outcomes for Caesarean Scar Ectopic Pregnancy Research

Survey is open until July 31, 2024.

Help us develop a core outcome set in Caesarean scar ectopic pregnancy. Tell us which outcomes are important to you?

Survey Link: https://redcap.link/coscar_round1

Other

Taking Part in Research – A Patient’s Perspective

Patient and CUH PPI Panel member Mike Willis (@histon_mike) has written a warm, funny blog about taking part in health research: what it involves and what it means for him. 

Read the article here: https://cambridgebrc.nihr.ac.uk/taking-part-in-research-a-patients-perspective/