PPI opportunities

This page has the latest PPI training and opportunities for involvement for researchers, patients and the public living in and around Cambridge.

All information on this page is updated weekly and is current as at 30 June 2022.

For members of the public

Involvement opportunities

Are you a patient or carer who has been affected by cancer in the East of England? 6 July 2022, 14:30-16:00 or 18:00-19:30

We’d love you to join us on Thursday 7 July for online focus groups from 14:30-16:00 or 18:00-19:30.

Help shape cancer care in the East of England.

Join the meeting here.
Or share your thoughts here.

Participation opportunities

Understanding experiences of fatigue in young people with acquired brain injuries

If your child is aged 12-21 and is living with the effects of a childhood acquired brain injury, then I would really like to hear about your child’s experience of fatigue.

If you would like to participate in the study, both you and your child will be invited to take part in a 30-minute conversation, online.

The project aims to explore how young people with childhood acquired brain injuries experience fatigue and how fatigue affects their lives.

Please email me, Eleanor Scouler, msxes16@exmail.nottingham.ac.uk, if you are interested to learn more about the study or would like to participate.

Events

‘Look at our whole journey’ – For families who had a baby in neonatal care. 1 July 2022, 10:00-14:00

An in-person event bringing together neonatal parents and staff from maternity, neonatal and community services at The Rosie Hospital.

Register here.

Having a baby in neonatal care can be a distressing time for parents. This event will bring together neonatal parents and staff from maternity, neonatal and community services at The Rosie Hospital to share experiences and work together to improve the neonatal journey.

The event will be held at The Fulbourn Centre, Cambridge, on Friday 1st July, from 10am-1pm with a free buffet lunch available at 1-2pm. There is free parking available and we can support with travel expenses if required. Children are welcome to attend and the event will be expressing/tube/breastfeeding-friendly.

We would like to welcome parents/carers who have had a baby on The Rosie Neonatal Unit within the last 5 years (2017-2022). If you are booking for two parents/carers, please make sure you select two tickets as we have limited capacity.

Staff, please may we ask that you do not wear work uniform to this event.

If you book for this event and then are no longer able to attend for whatever reason, please do let us know as soon as possible so we can offer your ticket to someone else. Thank you.

The event will be hosted by Rosie Maternity and Neonatal Voices, the service user-staff partnership at The Rosie Hospital, led by parents and advocates. The event is supported by The Rosie Hospital and Cambridgeshire and Peterborough Clinical Commissioning Group.

If you have any questions, please feel free to contact Kelly at capccg.rosiemnvp@nhs.net

Getting involved in health research at NIHR Cambridge BRC. 31 October 2022, 12:00-13:00

Patients and members of the public have an important role to play in the research that we do, and this session will look at how you can help make our research even better by getting involved.

Register here.

For researchers

Other

Inspire Fund public engagement scheme open for new applications. Deadline: 4 August 2022, 17.00.

I’m happy to share that our public engagement grant scheme, Inspire Fund, is open for new applications.

Alzheimer’s Research UK are offering grants of up to £25,000 to support public engagement projects that engage with underserved audiences on the topic of dementia, and meet one or more of the following criteria:

  • Build knowledge and engage the public with the topic of brain health.
  • Engage and create dialogue with people about the progress being made in biomedical dementia research.
  • Highlight the value of research volunteers and reduce barriers to research participation .

The scheme is open to people, organisations and communities with the ideas, passion and ability to realise innovative public engagement projects on the topic of dementia.

We encourage applicants to forge links with communities, collaborators or groups to strengthen ideas, and we will be facilitating relationship building during the application process.

Before submitting an expression of interest, we encourage those interested in applying to join us for our Speed Networking Event at 11am (BST) on 7 July. This will help you find out more about the scheme as well as meeting potential partners for your project.

You do not need to have a fully formed proposal to submit an expression of interest, but should outline what you would like to do, the purpose or need for it, the outcomes you want to achieve, and what partners or expertise you are seeking to be able to deliver it. The deadline for expressions of interest is 5pm on 4 August 2022.

You can find out more about the Inspire Fund on our website, with details of eligibility, the application process and expression of interest form, frequently asked questions and previous Inspire Fund projects.

Training on research impact. 31 August 2022, 09:00-12:00

I’d like to invite you to a free training opportunity on research impact. On 31 August, Mark Reed, Eric Jensen and Sarah bowman will introduce you to two powerful tools that will enable you to think systematically about your pathway to impact, including risks and assumptions you might need to take into account and indicators to help you track your progress.

Mark Reed (SRUC and Fast Track Impact) will introduce you to logic models based on his widely used impact planning template, and Eric Jensen (University of Illinois at Urbana-Champaign, University of Warwick and Methods for Change) will introduce the theory of change approach. Mark will then explain how you can co-produce a more detailed theory of change with stakeholders, and Eric will show how theory of change can be used to evaluate impact, using a case study of water research. You will then have an opportunity to see examples of logic models and theory of change developed with researchers by Sarah Bowman (Trinity College Dublin).

This event is a great opportunity to discover what our more comprehensive Public Engagement Evaluation online course can offer you. You can visit our website for more information: www.methodsforchange.org

Register your place here.

New guidance for easier payment of public contributors to research.

New guidance has been launched to help organisations, researchers and involvement staff pay members of the public helping shape life-changing health and social care research across the UK and Ireland.

Slow and complicated payment procedures for public contributors, patients and members of the public who contribute to research, have been identified as a key barrier to inclusive and accessible public involvement, recognised by the UK and Ireland.

Developed by the National Institute for Health and Care Research (NIHR), Health and Care Research Wales, and the Health Research Authority (HRA), this guide aims to describe principles of payment for public contributors and key challenges currently faced in the sector.

These include inflexible payment systems, inconsistencies within departments and contradictory information, providing direction to those managing and administering payment, and support them to understand employment status and tax regulations signposting to information and Her Majesty’s Revenue and Customs (HMRC) guidance in order to inform decisions on payments based on the involvement activities such as attending events, seminars, remote document review etc.

Find out more here.

Discover more about the NIHR Cambridge BRC

Contact us by phone, email or web for more information.

Events Calendar

Listing relevant events and training sessions for researchers and members of the public.