PPI opportunities

This page has the latest PPI training and opportunities for involvement for researchers, patients and the public living in and around Cambridge.

Please note that these are external events and the CUH PPI Team is not involved with their organisation or management, unless otherwise stated.

If you have any questions, please reach out via the avenues provided for each opportunity.

All information on this page is renewed weekly – last updated on 21 November 2024.

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Events

BTRU Seminar: “An inside look into the Blood Service” talk by Amanpreet Dhesi, NHSBT

Monday 25th November 2024, 13.00 to 14.00 HLRI and Online

Opportunity to hear more: “NHSBT delivers over 1.4m units of red cells, 250,000 units of platelets and 200,000 plasma components for transfusion to 260 hospitals annually.

Join the presentation to have an inside look on how it is done, the challenges we face and how R&D is continuing to transform the service to save and improve even more lives.”

Link: https://www.donorhealth-btru.nihr.ac.uk/

Email: donorhealth@medschl.cam.ac.uk for TEAMS link

Involvement opportunities

PTSD Focus Group

12pm-2pm on Friday 29th November. Flyer attached

Deadline: 10am on Wednesday, 27th November.

You will be invited to join us for an in-person focus group to be held in central Cambridge. You are welcome to bring a supportive friend or family member if you would like to do so. The session will include a brief presentation on our research approach and discussion topics.

We would like to cover:

•  Your journey with PTSD (without disclosing specific details)
• Your experiences with treatments for PTSD and any challenges you have faced in engaging with treatments
• Your thoughts on potential future research directions

Email Professor Amy Milton alm46@cam.ac.uk with “PTSD Focus Group” in the subject line by 10am on Wednesday, 27th November.

She’ll confirm if you have a place on the focus group and provide further details by 12pm on Wednesday, 27th November. Applications will be considered on a first-come, first-served basis.

Body fluid/tissue sampling in research projects questionnaire

Many cancer research studies focus on early detection of the disease when treatment is more likely to be successful. These research projects can include individuals with no history of cancer and often involve taking multiple types of sample of multiple time points.

To inform future studies, we are interested in the public/patient perspective on what sampling in them should look like.

We have designed a short questionnaire (~5 mins) and would be grateful to responses here

James Whitworth – Assistant Professor and Honorary Consultant in Clinical Genetics. james.whitworth@nhs.net

Survey

Have you had a hip replacement or do you need one?  What matters to you?  

A team of researchers at Cambridge University, led by CUH Consultant orthopedic surgeon Mr Khanduja, are researching ways to improve outcomes from hip replacement surgery. 

If you have lived experience of having or needing a hip replacement, please take the time to fill out this brief survey – https://forms.office.com/e/kFZf6hYbSs

EoE – SDE

Group members wanted for East of England Secure Data Environment Core Public Advisory Group (leaflet)

Are you interested in how patient data is used for research in the East of England?  The East of England Secure Data Environment (SDE) is a digital platform that allows approved researchers to securely access de-personalised patient data for health research. 

It has been built in partnership with NHS organisations across the East of England, with state-of-the-art cyber security measures, controlled access and robust oversight of data usage.  We’ve been working with a small group of people from across the East of England who meet with the SDE team about every 2 months to provide a public perspective on the project and to advise on its development.

This group is called our ‘Core Public Advisory Group’ and we are welcoming applications for new members.  You can read more about the role, including information about payments, in the attached leaflet.

Interested in applying?  Apply here: https://forms.office.com/e/hcnhS9knVU or email cuh.eoe.sde@nhs.net for more information.

The Diverticular Disease PSP wants to know the questions that are most important to you!

The survey is open to people with  diverticular disease, carers, families, healthcare professionals, and anyone else affected by this condition.

Have your say: https://surveymonkey.com/r/DDPSP_Priorities_GutsUK

Other

Preterm birth blog

National Institute for Health and Care Research

Preterm birth is the single biggest cause of neonatal mortality and morbidity in the UK. In her latest blog, our CEO Lucy Chappell explains how we’re working to remove the barriers facing research into this important area.

Read the blog: https://t.co/FP1HIr2lZh