You are here: / / / / Public opinion on sharing data from health services for clinical and research...

Public opinion on sharing data from health services for clinical and research purposes without explicit consent: an anonymous online survey in the UK

Publication: BMJ Open

Linda A Jones, Jenny R Nelder, Joseph M Fryer, Philip H Alsop, Michael R Geary, Mark Prince, Rudolf N Cardinal

13 April 2022

Summary

Researchers have published results from a national survey of public opinion on sharing health data to support clinical care and research. Nearly 30,000 people took part in the anonymous survey online from February to September 2020, which was open to all UK residents to measure people’s opinions on health data and consent.

View publication

The NIHR Cambridge BRC is part of the NIHR and hosted by Cambridge University Hospitals NHS Foundation Trust in partnership with the University of Cambridge. We are at the heart of the Cambridge Biomedical Campus, Europe’s largest health research area.

Bluesky

Contact Us

Cambridge Biomedical Research Centre
Box 277
Hills Road
Cambridge
CB2 0QQ

Tel: 01223 348490

Useful Links

About Us
Research
Governance Structure
Partners
Publications
PPIE in Research
News/Events
Vacancies
Accessibility
Privacy

Retweet on Twitter NIHR Cambridge Biomedical Research Centre Retweeted
nihrresearch National Institute for Health and Care Research @nihrresearch ·
23 Jan

Could you lead an innovative data-enabled clinical trial to answer important research questions in health and social care?

We're offering research funding for ambitious proposals! For more details and to apply, please see: https://www.nihr.ac.uk/funding/ambitious-data-enabled-e-trials/2024216

Reply on Twitter 1882443185110024211 Retweet on Twitter 1882443185110024211 2 Like on Twitter 1882443185110024211 3 Twitter 1882443185110024211
Retweet on Twitter NIHR Cambridge Biomedical Research Centre Retweeted
healthinfoweek Health Information Week @healthinfoweek ·
23 Jan

The @NIHRresearch evidence collection on #HealthLiteracy makes the case for improving #PatientInformation.
It also includes tips on how to make sure everyone can understand the information they are given.
https://evidence.nihr.ac.uk/collection/health-information-are-you-getting-your-message-across/
#HIW2025 #HealthInformation #HealthInformationWeek

Reply on Twitter 1882433606641172864 Retweet on Twitter 1882433606641172864 7 Like on Twitter 1882433606641172864 7 Twitter 1882433606641172864
cambridgebrc NIHR Cambridge Biomedical Research Centre @cambridgebrc ·
21 Jan

Would you like to gain new perspectives and expand your professional network? Are you an early to mid-career researcher based in NIHR infrastructure or Research? The NIHR Mentoring Programme has expanded! Register interest before 4pm on 18th Feb.
https://bit.ly/3CizbmU #NIHR

Reply on Twitter 1881720502450008378 Retweet on Twitter 1881720502450008378 Like on Twitter 1881720502450008378 Twitter 1881720502450008378
Retweet on Twitter NIHR Cambridge Biomedical Research Centre Retweeted
cambcancer Cambridge Cancer Research Hospital @cambcancer ·
20 Jan

We are delighted to share the news announced by the Secretary of State for Health and Social Care today that Cambridge Cancer Research Hospital can proceed as planned following the New Hospital Programme review.

👉🏼https://bit.ly/ccrhnhp
@CUH_NHS @Cambridge_Uni @CRUKCamCentre

Reply on Twitter 1881416972929552498 Retweet on Twitter 1881416972929552498 12 Like on Twitter 1881416972929552498 38 Twitter 1881416972929552498
Retweet on Twitter NIHR Cambridge Biomedical Research Centre Retweeted
crukcamcentre CRUK Cambridge Centre @crukcamcentre ·
20 Jan

📢 Watch out for our content over the next week or so highlighting our imaging research.

Advanced cancer imaging is changing how we see and treat cancer. Watch this video that explains what it is and when it's used.👇

#FocusOnCamCancer @CRUKCamImaging @CUH_NHS @CRUKresearch

Reply on Twitter 1881273216653545656 Retweet on Twitter 1881273216653545656 5 Like on Twitter 1881273216653545656 12 Twitter 1881273216653545656
cambridgebrc NIHR Cambridge Biomedical Research Centre @cambridgebrc ·
17 Jan

#BePartOfResearch - Read about how taking part in a research study, looking at a new treatment option for chronic rhinosinusitis and nasal polyps, has enhanced Alan Towse's ability to smell....'It has improved my life so much' @NIHRrdn

Reply on Twitter 1880231899978952954 Retweet on Twitter 1880231899978952954 1 Like on Twitter 1880231899978952954 1 Twitter 1880231899978952954
View more Tweets
© Copyright - NIHR Cambridge Biomedical Research Centre 2025
Physical activity attenuates but does not eliminate coronary heart disease risk...Association Between Physical Activity and Risk of Depression: A Systematic Review...